Thursday, September 27, 2012

It's Official, I Have Been Diagnosed.

(Cathy) After many months of frustration my doctor's have finally confirmed my diagnosis as "Complex Regional Pain Syndrome" (CRPS), formally known as "Reflex Sympathetic Dystrophy" (RSD). I had understood that my doctors were leaning toward CPRS and I tended to agree after reading up on it on the Internet. I will provide a link to a very good clinical explanation of CRPS  below. 

Definition: CRPS, or complex regional pain syndrome is a condition that occurs when there is prolonged pain in the area of a previously injured arm or leg. The condition was previously known as RSD, or reflex sympathetic dystrophy.
The pain is often associated with tissue swelling, increased sensitivity to touch, and hair/nail growth changes.
Also Known As: RDS
At the moment the hardest part for me is the realization that there is no known cure. Also, before I can ever drive again I have to take a capability test so as not to void out our car insurance. I am off work indefinitely. THIS WHOLE THING SUCKS! There, I said what I am feeling. I know and totally appreciate that my situation could be a lot worse. I just have to get used to a new way of living. Adaptation is a human speciality. I am just not ready to adapt yet. I am tired and upset and angry and in pain. My specialist took me off my pain medication "cold turkey" because of the drastic side effects on my personality. 
Thanks for listening.

1 comment:

  1. Cathy, I'm so sorry to hear this. Hopefully things will get better! Take care.